
Sickle Cell Society – Helpline (Mon-Fri, 9am-5pm except bank holidays)
Mon & Tue: 07842 245 980 Sickle Cell Society
Wed: 020 8961 7795 Sickle Cell Society
Thurs & Fri: 07809 736089 Sickle Cell Society
Email: info@sicklecellsociety.org Sickle Cell Society
Sickle Cell and Thalassaemia Centre (Brent)
0208 453 2050 / 0208 453 2052 lnwh
Contact – for families / children with sickle cell disorders
Sickle cell disease is an inherited blood condition that changes the shape of red blood cells, making them rigid and sickle-shaped instead of round and flexible. This can cause blockages in blood flow, severe pain, anemia, infections, and other health complications. The condition is especially common among people of African, Caribbean, Black American, and South Asian heritage, though it can occur in any community. For many families, it is a condition that has been passed down for generations, often with little awareness of its full impact until a crisis occurs.
September is observed as Sickle Cell Awareness Month, a time to highlight the experiences of those most affected and to ensure their voices are heard. Awareness is vital because knowing your sickle cell status is the first step to prevention and proper care. Many people carry the sickle cell trait without symptoms, but if two carriers have children together, there is a chance the child could inherit sickle cell disease. For this reason, early testing, including premarital and prenatal screenings, is an important part of protecting future generations.
Research into sickle cell disease has advanced significantly in recent years. New treatments such as hydroxyurea, blood transfusions, and more recently, innovative gene therapy approaches are offering hope and improved quality of life for patients. Bone marrow and stem cell transplants remain the only known cure, though they are not yet widely accessible. Specialist centers and hospitals in the UK, US, and other regions provide dedicated care, but more investment and awareness are needed to make treatments available to all communities. The need for awareness is even greater in developing countries, where access to information, testing, and medication is often limited. In many parts of Africa, the Caribbean, and South Asia, lack of resources means patients face higher mortality rates and fewer treatment options. By raising awareness globally and supporting healthcare development in these regions, we can help ensure that everyone, regardless of where they live, has the chance to access lifesaving care and information.
NHS Sickle Cell Disease Information, Sickle Cell Society
For any questions or further information, feel free to reach out to us at admin@johnpaulawifoundation.org – we’re here to help!











